Humans of ME/CFS
M.E. and ME
I ran, I swam, it’s who I am
I laughed, had fun, enjoyed the sun.
I was doing such when this begun.
Felt a chill on a good warm day
Aches and pains that won’t go away
Like the flu, I heard it said
But arms and legs are made of lead.
Can’t remember what I was about to say
Simple words have gone astray
Can’t make a choice between two simple things
Someone else is pulling my strings.
I try to read, but it only drains
Focusing harder, just scrambles my brains
The dark clouds descend, lead to despair
The weight of three men sinks into my chair.
No outward sign to give a clue
No bandage, mark, no black and blue
Strange, it seems I always look well
Look from this side, then you could tell
Remove the mask for a day to see
The evil face of this beast called M.E.
Like a thief in the night it takes away
Your hope, your strength, your friends
Your likes, your loves your chance to play
And never makes amends
All we want is to be believed
And trusted when we say
Hey GP, can’t you see
We didn’t ask to be this way
This is real, a real big deal
As big as the ‘popular’ ills
It needs to be taught, given some thought
Not just a bundle of pills.
We don’t have a choice, we need a real voice
Give us some hope TODAY
So don’t be doubting, we’re gonna keep shouting
We’re just not going away.