Humans of ME/CFS
I stared feeling run down and not quite myself nearly four years ago. I had all these strange things happen to my body. I just couldn't get my head around it. The symptoms I had/have scared me and at times I actually thought, “I'm dying.” Who gets this exhausted for no reason? There has to be a reason. There is a reason. Why on earth is nobody caring enough to find out?
I'm only 45 years of age. When I think about it too much it makes me incredibly sad and cry. It's very frustrating having no help and feeling so helpless. This isn't normal. We need help.
I want my life back the way it was four years ago. I was strong. I walked everywhere. I had incredible stamina. I just don't get it. A doctor actually told me that there is no cure for what I've got and I just have to deal with it. She said, "we don't know what it is,” yet she's able to tell me I won't recover from it.
She said it won't help lying around and I need to find ways to manage it. I stopped smoking, I hardly drink alcohol, I've gone vegetarian, no dairy, no wheat. I pace myself. I’m in a lot of pain. I don't feel some of the doctors I've seen care. I can see and hear their annoyance when they are trying to explain something they don't know anything about.
People need to be educated about ME/CFS. There NEEDS to be funding for this horrible illness. We shouldn't be made to feel so badly about ourselves. I was told at the very beginning that it was all to do with anxiety and offered the "magic pill" antidepressants. I fought it for a year and gave in, but my symptoms are all still there. I would love to be taken seriously and offered help from someone who knows what causes this illness, but there just doesn't seem to be anyone around qualified to do that.
Funding! Funding! Funding! Peace and Love.