Humans of ME/CFS
It took all these last 10 years with ME/CFS to learn how to be reasonably happy. Without cycling, without my freelance job as an interpreter, without so many contacts. I lost these things because of my lack of energy. Keeping in touch with friends requires adhering to other people's rhythms and that is often impossible for someone with ME/CFS.
It all started with a heavy infection that lasted more than a year. My diagnosis came quite soon, but everything had already changed completely in my life.
After a long legal battle with my insurance company, they recognized my inability to work, but eventually stopped paying my indemnity. So, besides trying to stand up a few hours a day, I am trying to get my loss of income indemnity back, via a legal procedure in Court. This is not a helpful treatment...
I have tried all possible treatments, but the only real one is PACING, slowing down and learning to say NO to myself before saying NO to others. I was 55 when it all started...I hope this disease will be soon recognized for how severely limiting it really can be.