Humans of ME/CFS: Share Your Story
The Solve ME/CFS Initiative has launched a campaign to help increase awareness of —and ultimately research funding for—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The campaign, “Humans of ME/CFS” is a takeoff of the popular “Humans of New York” photoblog and Facebook page.
The aim of the campaign is to show the faces and stories of those suffering from ME/CFS so that those who are in charge of allocating research funds cannot deny the widespread devastation this disease has inflicted on so many for so long.
We have created a simple form for you to share the impact this disease has had on your life. You can find it here. A few things to keep in mind about the form:
1. Your story must be told in 500 words or less. We know this will be challenging since many stories have been decades in the making and there is much to tell, but to have the impact we desire, they need to be brief.
2. Your story should share your personal experiences and not read like a medical chart. How would you describe your journey with ME/CFS to an old friend you have not seen in many years and have only a few minutes with? What is your life like with the disease? How has it affected those around you?
3. You must upload a photo. We understand that this may be challenging for some in our community, but it’s essential to put a face with each story. If you need help, perhaps a family member, neighbor or friend could lend assistance.
4. While we ask for first and last names on the form, we will only use first names and the first letter of your last name on this site.
Please contact us with any questions at HOMECFS@solvecfs.org.
We can’t wait to read your stories!