Humans of ME/CFS
My name is Julie. I believe my Chronic Fatigue Syndrome (CFS) was triggered by an infection. I was diagnosed after a lot of heart-related symptoms and anemia. When that was figured out, my doctor did not know how else to help me. I switched doctors and found one that looked at all my symptoms and asked me if I ever heard of Chronic Fatigue Syndrome. I was sent to a well-known clinic in MN. I went through every test available and was diagnosed with CFS. I felt relieved I had a diagnosis, but there was no known treatment other than CBT, biofeedback, and pacing. Our famous clinic could not even help me. I went back to work, worked 2 jobs, and got my social work degree. All the while, I slowly began to decline functionally until this year when I had to stop working altogether. I have found support in an online support group for people that suffer from ME/CFS. I have built a team of doctors (primary, rheumatologist, and internal medicine) who understand and are open to learning more about this illness. I have tried a chemo-drug and, so far, 4 doses like the current trials being done in Norway. I am not promoting anything, but I do want people to know that some doctors will help you find things to help alleviate symptoms. If I had to give advice for someone with ME/CFS, it would be to learn what your limits are. If you are exhausted, rest. If you want more information about this illness, please look for up-to-date information. There is a lot more research being done for our illness. It will be just a matter of time before it will all be solved. Stay strong my fellow sufferers. We may not be strong just by ourselves, but we are a force in numbers.